*Hachette Go publishing in 2024* 

It would have been nice if your kid came with a manual. But, it doesn't work that way. EVERYTHING NO ONE TELLS YOU ABOUT PARENTING A DISABLED CHILD is your honest, relatable, actionable guide to the systems, services, and supports you'll need to do the things your child needs in order to be their very best, including: 

Diagnosis

Doctors & Therapists 

Insurance & Social Services 

School

IEPs

Disability Rights and Advocacy 

Finances and Future Planning 

Your Role as a Parent Caregiver

How Others Will Relate to Your Child

Paperwork, paperwork, and more paperwork 

Stemming from my own experience parenting two amazing kiddos, one of whom has multiple disabilities, EVERYTHING NO ONE TELLS YOU ABOUT PARENTING A DISABLED CHILD sources my firsthand experience, along with fellow parents on this journey, and leading experts, many of whom are disabled themselves. 

This can be done. Parenting any child is a lot of work. My child has a rare genetic syndrome, so disability is part of who he is. And, here's the thing: I'm not out to change my child. I'm out to change the world. 

Let's do this.